We are working to give people affected by CMT the best possible quality of life we can – by providing people with the right information about management and coping strategies, the right information and advice about daily living issues, support with benefits claims – everything that someone living with an incurable disease needs to know – and is rarely told!
Did you know...
Charcot-Marie-Tooth disease is the most common inherited neurological disease in the world, and despite being so small, we have two people working for the charity who have the condition!
What makes CMT-UK different
We are the only charity dedicated to CMT in the UK. As I said before, we actually have two people with the condition working with us, giving us a unique insight into the condition.
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