Children’s Heart Federation

What the Charity does to make an impact

• They share information via two series of information sheets, heart conditions and caring for heart children.

• The Charity have an Information phone line for support and advice.

• Gives small grants to heart families to help with extra expenses eg. travel to and from hospital, subject to available funds.

• Provide INR machines (to check coagulation levels in children on blood thinners) where they are not available from the NHS trust, subject to available funds.

• Produces scarred Molly’s Dollies for children undergoing surgery or having treatment for a heart condition.

• Produces Rosie goes red, Violet goes blue a booklet that explains about a heart condition to young children.

• Advise policy makers and service providers on how the needs of children with heart conditions should be met.

• Share a twice monthly round up of congenital heart disease news via their e-journal: Heart2Heart that focuses on key UK and international stories.

• Support research projects across the globe to help make the future a brighter place for children with heart conditions.

• Campaign for improvements in health, social and educational provision for young CHD patients.

• Promote better awareness and support for heart children and families via their social media platforms on Facebook and Twitter.

How supporters' donations help

£24 can provide a Molly’s Dolly; a doll with surgical scars for a child with a heart condition

£200 will provide 10 information packs to families

£750 pays for an INR machine for a child on Warfarin

You might be interested to know

CHF’s information sheets are used by cardiac nurses to give to parents

CHF promotes the ThinkHeart campaign signs that a baby may have a heart condition

CHF is involved in research projects

Heart conditions are the most common health condition at birth

Important dates for your calendar

14th February - CHD awareness day

7th – 14th February - CHD awareness week