Metabolic Support UK is the leading patient organisation for Inherited Metabolic Disorders, supporting thousands of families worldwide. It is our mission to be the world’s leading advocate and provider of bespoke support to families; to signpost to the best experts; to raise awareness amongst the medical, healthcare, social care and teaching professions; and to fund research for treatments, and ultimately cures.
Did you know...
Metabolic Support UK (formerly known as Climb) was inspired by Jennifer Rachel Greene (1978 – 2007) who was born with a rare metabolic disorder called Cystinosis.
Finding little information and support available following this devastating diagnosis, Jen’s parents, Peter and Lesley Greene, with help from family, friends and the medical profession, launched the charity in November 1981, encompassing all metabolic disorders.
Metabolic Support UK’s work and reputation in has spread from the UK to Europe and beyond. It is part of a worldwide collaborative network of groups and organisations, ensuring it is at the forefront of developments such as newborn screening and treatments.
Metabolic Support UK continues to be committed to its vision of raising awareness and providing bespoke support to improve the lives of those affected by Inherited Metabolic Disorders, and keeping Jen’s legacy alive.
What makes Metabolic Support UK different
Metabolic Support UK is the leading umbrella patient organisation for all Inherited Metabolic Disorders, and continues to be committed to improving the lives of those affected, and keeping Jen’s legacy alive.
Metabolic Support UK’s work and reputation has spread from the UK to Europe and beyond. It is part of a worldwide collaborative network of groups and organisations, ensuring it is at the forefront of developments such as newborn screening and treatments.
Other ways to support
Our supporters have the opportunity to become a Metabolic Support UK Ambassador. By becoming an ambassador, they can help us raise awareness about Inherited Metabolic Disorders in their local communities and create a support network for patients and families living with Inherited Metabolic Disorders in their local area.
Each year, Metabolic Support UK run a number of campaigns, including Metabolic Disorders Awareness Week, to help raise awareness of Inherited Metabolic Disorders.
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