Cystic Fibrosis Trust

The Cystic Fibrosis Trust is the only UK-wide charity working to improve and transform the lives of people with cystic fibrosis and those who care for them. The Trust believes that everyone with this life-shortening, inherited condition deserves the best quality of life and real hope for the future, with access to high quality, specialist care.

Cystic Fibrosis Trust invests in cutting-edge research and aims to provide information and support to all sufferers and their families, UK-wide. A helpline is open to anyone touched by or living with cystic fibrosis. There is currently no cure for the condition but with the support of partners, supporters, researchers and fundraisers we believe that people with cystic fibrosis should be able to live a life unlimited.

Did you know...

  • The average life expectancy for those with cystic fibrosis (CF) has trebled since the Trust's inception
  • Due to the Trust's campaigning, all babies are now screened for CF via the heel prick test at birth
  • The Cystic Fibrosis Trust campaigns to raise awareness about the faulty gene that is carried by over two million people in the UK, most of whom have no idea. If two carriers have children, there’s a one in four chance their child will have the condition, which slowly destroys the lungs and digestive system.

What makes the Cystic Fibrosis Trust different

The Cystic Fibrosis Trust also runs the UK CF Registry; an anonymised database that lists everyone in the UK with the disease. It is a powerful tool that not only helps us monitor and audit CF care in the UK but it can also be used as a research tool to determine the best care and treatments.

Other ways to support

Volunteering to get involved and help with fundraising, lobbying, research and raising much needed awareness of cystic fibrosis across the UK. You can also show your support by following and liking the Trust on Facebook and Twitter.


One Aldgate

Contact Number

020 3795 1555