Shine provides specialist support from before birth and throughout the life of anyone living with spina bifida and/or hydrocephalus, as well as to families and professional care staff.

Working together throughout England, Wales and Northern Ireland, we reach over 11,000 members and their families striving to overcome challenges. We do this by welcoming them into our lively, inclusive community whilst providing specialist health and education advisers and regionally based support and development workers.

Their fundamental pledge

Shine enables people with spina bifida and/or hydrocephalus to get the best out of life.

Did you know...

Spina bifida literally means ‘split spine’ and develops before birth. It damages nerves in the lower body, affecting mobility, bowel and bladder function. Hydrocephalus can occur at any stage of life. The condition is caused by a build-up of fluid in the brain – fatal without medical intervention. This results in permanent difficulties with processing and remembering information.

Here’s what your money can do:

£5 can provide a new membership pack with information on how to manage conditions and cope, as well as where to seek support, guidance and help

£110 means that a school can receive a visit from a Shine advisor to support learning & inclusion

£500 can provide a health education day for parents of children to include ‘Bowel & Bladder’ day

What makes Shine different

Membership to Shine is free!

We host lots of different Facebook groups, based on age and regionality to enable people affected by the conditions to feel part of a community, access resources, advice and support.

Shine also campaigns to help prevent spina bifida through health education, campaigning for mandatory fortification of flour and promoting the need for women of childbearing age to prepare for pregnancy with supplementation of folic acid. Research has shown that should a prospective mother take a folic acid supplement correctly prior to falling pregnant, 70% of neural tube defects (such as spina bifida) could be avoided.

Other ways to support

There are many ways to get involved in our work. You could contact your local school or ask the company you work for to fundraise, or take matters into your own hands by jumping out of an aeroplane or running a marathon.

Also check out the ‘support’ page of our website and follow us on Facebook and Twitter.


42 Park Rd

Contact Number

01733 555988